Many are talking about the long-term COVID-19 symptom of smell and taste loss, but fewer people are talking about how this symptom can evolve over time.
I had COVID-19 in June and woke about a week into the virus with a complete lack of taste and smell. Absolutely nothing. I lost most of my appetite and began eating just for sustenance and sometimes texture.
After a few weeks, my senses just came back on their own. Eggs and peanut butter had a slightly different taste, but I wasn’t too worried about it because they were still edible and I could taste them.
Then one day, eggs and peanut butter were inedible. They tasted and smelled like rotting chemicals. Everything did. These nasty chemicals seemed to be stuck in my throat and constantly exuded out of my mouth and nose — distorting everything around me
I don’t know if I noticed an exact turning point, but I do remember eating fried rice and scallops on a Friday night and it being fine. Then, on Sunday night, my husband was making steak (my favorite food) and I had to cover nose with my t-shirt because it smelled so bad.
I took one bite of the steak and had to spit it out. I cried and fled to the bedroom to cover my face with my shirt again…maybe even put one of our newly bountiful face masks on.
It sounds dramatic, and maybe it was a little, but it’s hard to explain how devastating it is to be surrounded by a constant smell of sewage and an inability to taste or smell anything else.
Upset and frustrated about this new development in my senses, I turned to Google, where my symptoms of phantom smells led to diagnoses of brain tumors. I called my doctor and they made me get another COVID test (which was negative).
From there, I began experimenting to see what foods I couldn’t eat and smells I could no longer be around. I found that nearly every protein (including beans) had the same terrible smell and taste, as did onions, garlic, TOOTHPASTE, and other random things.
Eating adequate amounts of protein became this almost obsessive concern for me and I finally realized I could handle protein powder and tofu. So, I started drinking a fruit smoothie with protein powder for breakfast, a tofu, avocado, vegan sour cream concoction I whipped up for lunch, and dinner was still a guessing game. Vegan grilled cheese had an altered taste, but was OK, and tomato soup was unpalatable. Most fruits, vegetables, carbs, and sugars were fine, but I had to be careful what spices I used to season my food — mostly just salt and pepper.
Instead of my husband cooking every night and us sitting down to talk over dinner, he made food for himself and I sat in the other room so I didn’t have to smell his meal.
This went on for so long that he decided to go on a 10-day green smoothie cleanse because I already wasn’t eating much, so it was a good time for him to do the same.
After continued research I eventually found one news article talking about this bizarre symptom of COVID-19 that develops after smell and taste “come back.” It led me to a Facebook support group for smell and taste loss where I found people across the world experiencing the exact same thing I was, and they all thought they were crazy too.
I posted in the group asking about the rotting chemical smell and was directed to a website called AbScent. This is an online community that started in the UK to give those with anosmia (loss of smell), parosmia (distorted smell), and phantosmia (phantom smell) a feeling of togetherness when it seems like you’re the only one who has this problem. They’ve also created a survey to collect research about how these disabilities are effecting people across the world.
Just being able to say “I have parosmia. It’s a real thing and that’s why everything smells and tastes wrong,” was reassuring.
Fast forward a few weeks later and here we are. It’s the day after my husband’s smoothie cleanse and I still can’t smell or taste anything the way I should be able to. We were discussing what celebratory meal we would order after the cleanse and couldn’t think of anything I could.
I discovered I can eat fish and sushi, so that may be our only option, but I’ve had that four times in the past week because it’s one of the few things that actually tastes normal. I just wish I could sit down and eat dinner with my family again. Praying that will happen soon.
There hasn’t been much research into loss of or distorted taste and smell. It has been considered a non-severe problem until now. The large number of those who have smell and taste problems from COVID-19 may change this thinking. The COVID-19 Smell and Taste Loss support group on Facebook has nearly 7,000 members now, and while this experience isn’t great, I think many of us feel comforted knowing we aren’t alone.
I wrote this blog to add something to the few resources available for us parosmiacs and hope you can find reassurance knowing there are people going through the same thing you are. We can’t smell you, but we can hear you.